FOR IMMEDIATE RELEASE
CONTACT: Mary Sandridge, firstname.lastname@example.org, 434-270-0201
ALZHEIMER’S ASSOCIATION TRIALMATCH® PROVIDES MORE THAN
250,000 PEOPLE WITH OPTIONS FOR ALZHEIMER’S CLINICAL TRIALS AND STUDIES
Charlottesville, VA – Like many couples, Paul and Sarah Hornback look forward to growing old together. That future became unclear six years ago when Paul, a former Marine pilot and engineer with the U.S. Department of Defense, was diagnosed with young-onset Alzheimer’s at age 55. Paul felt trapped, with few options. But that changed when he found out he could actively join in the fight against Alzheimer’s by enrolling in clinical treatment trials. Sarah felt just as empowered upon learning she could participate in Alzheimer’s-related research. Alzheimer’s Association TrialMatch helped them both.
Alzheimer's Association TrialMatch is a clinical studies matching service that connects individuals with current studies.
Alzheimer’s disease is reaching epidemic proportions. The immediate need for advances in prevention and treatment methods has led to an unprecedented call for clinical trial participants. Before any drug or therapy can be used in clinical practice, it must be rigorously tested to find out whether it is safe and effective in humans.
“Since its debut in 2010, Alzheimer's Association TrialMatch has engaged more than 250,000 people in the possibility of participating in important Alzheimer’s clinical research studies, said Sue Friedman, president & CEO of the Central and Western Virginia Chapter. “TrialMatch is open to people with Alzheimer’s disease or related dementias, their caregivers, family members and physicians.”
Using this Web-based service (alz.org/TrialMatch), TrialMatch users create and manage a personal profile that includes information about their diagnosis, location and other preferences. This profile is then matched with a continuously updated database of Alzheimer’s disease and dementia clinical trials. New users receive a customized list of potential study matches and can choose to be notified via email when a new study that matches their profile is added to the database.
"After my diagnosis, I felt like I was trapped, with few options, but from my work as an engineer I knew that the way to find solutions was to test things," said Paul. "Sarah and I turned to the Alzheimer's Association for help and learned about the opportunity to participate in clinical trials and how Alzheimer’s Association TrialMatch could help us do that. To be part of a solution for this disease is empowering. I feel like I am able to take my life back and do something."
Using TrialMatch, Paul learned about a clinical trial at a university in Kentucky to test whether an already-approved treatment for immune system problems may be effective in targeting the hallmark amyloid plaques of Alzheimer’s disease. A year later he was accepted into the study.
“I realized I too could participate in Alzheimer’s-related research as a healthy volunteer and set up my own TrialMatch profile,” said Sarah. “Since then I have matched into several studies, including one designed to find out more about the health of caregivers and another to assess the support and education needs of caregivers in rural areas. While Paul was participating in research toward finding a treatment, I was participating in studies with the potential to help individuals who care for family members or friends with Alzheimer’s. That made me feel like I was doing everything I possibly could in the fight against this disease.”
For people with Alzheimer’s and their caregivers, participating in research studies presents an opportunity to play a more active role in their own treatment, contribute to research that could change the course of the disease, and benefit future generations.
“Recruiting and retaining trial participants is now the greatest obstacle, other than funding, to developing desperately needed treatments for Alzheimer’s disease,” said Friedman. “With TrialMatch, we can fill trials faster, which can help us get answers faster and bring us closer to finding better treatments for Alzheimer’s.”
People in clinical trials may gain access to potential treatments before they are widely available. They may also receive expert medical care at leading health care facilities, often free of cost.
More than 5 million Americans are living with Alzheimer’s disease, according to the Alzheimer’s Association 2016 Alzheimer’s Disease Facts and Figures report. By 2050, the number of people with Alzheimer's may nearly triple, to as many as 16 million, barring the development of medical breakthroughs to prevent, slow or stop the disease.
About Alzheimer’s Association TrialMatch
Alzheimer’s Association TrialMatch is easy to use – with web and phone support, specially trained staff and tools developed with input from people with Alzheimer’s – and is available to users free of cost. As of October 2017, more than 250,000 individuals have registered to search for Alzheimer’s clinical trials. Currently, TrialMatch lists more than 250 research studies at over 700 local trial sites across the United States and Canada. These include treatment, prevention, diagnostic, and quality-of-life studies.
The strength of this service is its comprehensive, constantly updated database of Alzheimer’s, mild cognitive impairment and other dementia trials. Patients and caregivers are encouraged to share their trial matches with their health care professionals to help decide whether a clinical trial is appropriate.
How to use Alzheimer's Association TrialMatch
STEP 1: Access TrialMatch online at alz.org/TrialMatch or by calling (800) 272-3900.
STEP 2: Complete a brief questionnaire, either online or over the phone, to create a profile.
STEP 3: The Alzheimer’s Association will compare your unique profile to its comprehensive, continually updated clinical study database and present you with the studies you match to across the country.
STEP 4: Contact the site coordinator listed for the study or studies of interest to you to determine next steps. Alzheimer’s Association TrialMatch specialists are available from 8 am to 8 pm CT, Monday through Friday to answer questions about the TrialMatch service.
The technology and platform for Alzheimer’s Association TrialMatch is provided by EmergingMed.
About the Alzheimer's Association
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s research, care and support. Our mission is to eliminate Alzheimer’s disease through advancement of research, to provide and enhance care and support for all affected, and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer’s. For more information, visit alz.org or call 800-272-3900.
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